Living Wills and Healthcare Directives: Planning Medical Decisions

Advance directives guide choices for healthcare professionals and caregivers in certain situations. For example, a medical team may use advance directives when you're unable to talk and are terminally ill, seriously injured, in a coma, in the late stages of dementia or near the end of life .

75% of Americans

prefer to die at home, yet less than 33% actually do

Advance directives aren't only for older adults. You can have unexpected accidents, illnesses or end-of-life situations happen at any age. So it's important for all adults to prepare these papers . By planning ahead, you can get the medical care you want and avoid unnecessary suffering. You also can relieve caregivers of decision-making burdens during times of crisis or grief .

New 2026 Research: Why Conversations Matter as Much as Documents

As Hong Kong prepares to enact the Advance Decision on Life-sustaining Treatment Ordinance in May 2026, researchers at HKUMed developed the "Advance Care Planning Communication Assessment Tool" (ACP-CAT) to assess actual medical consultations .

90%+
patients want active role in care decisions
70%
of discussions explored fears about treatments
30%
touched on non-medical priorities
5%
discussed surrogate decision-makers
An AMD is just a document. What is more important are the conversations that help us understand what matters most to patients as they approach the end of life—a communication process known as advance care planning, or ACP.
— Dr. Jacqueline Yuen Kwan-yuk, HKUMed
Surrogate decision-makers rarely addressed
Less than 5% of conversations
Life values overlooked
Only 30% discussed non-medical priorities
Care plans not aligned with patient values
Fewer than one‑third of cases

The team now plans to integrate the ACP-CAT into clinician training and explore AI technologies to make ACP training widely accessible, especially in regions with too few palliative care specialists .

2026 Update: Malta Introduces Living Wills (Advance Medical Directives)

Draft Law Parliamentary debate expected 2026

The government has presented a draft law introducing "Living Wills", formally known as Advance Medical Directives, aimed at giving individuals greater control over their medical treatment while safeguarding dignity at the most vulnerable stages of life .

Key provisions:

Eligibility

Adults 18+, full mental capacity

Formalities

In writing, notarial act, registered within 15 days

Doctor's Role

Explain medical conditions, outcomes, ensure understanding

Flexibility

Amend or revoke anytime while capacity retained

What the Living Will allows — and what it does not:

  • Specify which medical treatments to refuse in the future
  • Cannot request specific treatments or euthanasia
  • Palliative care cannot be refused
This is not about euthanasia. It is about giving individuals the possibility to make their own decisions regarding medical care, without imposing that choice on anyone.
— Rebekah Buttigieg, Parliamentary Secretary for Equality and Reforms

California SB 1088: Strengthening End‑of‑Life Care Protections (2026)

Senator Catherine Blakespear introduced SB 1088 to ensure Californians get the end‑of‑life care they desire by improving clarity and consistency among the three types of advance care planning forms .

Advance Care Directive
Designate someone to make medical decisions; explain what treatments should/should not be done
Prehospital DNR
Decline resuscitative care when breathing or heart stops
POLST
Includes DNR section plus ventilation, ICU, transport, comfort measures, artificial nutrition

Commonsense changes under SB 1088:

  • DNRs and POLSTs can be signed by nurse practitioner, physician's assistant, or doctor (not just physician)
  • POLST forms may be signed electronically
  • Future DNRs and POLSTs must be dated
  • DNRs and POLSTs executed outside California apply in the state
Californians with serious illness or nearing the end of life need clear and effective ways to express their preferences for medical treatments and have them honored by all healthcare professionals.
— Jennifer Moore Ballentine, CEO, Coalition for Compassionate Care of California

Virginia HB 548: Uniform Health Care Decisions Act (Introduced Jan 13, 2026)

Virginia House Bill 548 proposes to repeal most provisions of the current Health Care Decisions Act and enact the Uniform Health Care Decisions Act .

Key provisions:

  • Process for execution of advance health care directives
  • Criteria for determining capacity to make health care decisions
  • Default surrogate in absence of appointed agent
  • Powers and duties of agents
  • Duties of health care professionals
Prefiled January 13, 2026 – Committee referral pending

West Virginia Code: Private Decision-Making Process

West Virginia Code §16-30-6 establishes clear rules for living wills, medical power of attorney representatives, and surrogates .

§16-30-6. Private decision-making process; authority of living will, medical power of attorney representative and surrogate.
Surrogate Authority

May release medical records and make health care decisions

When Authority Commences

Upon determination of incapacity; ceases if capacity regained

Access to Information

Same right to medical information as the incapacitated person would have

Funeral & Organ Decisions

Authority continues after death for autopsy, funeral, organ donation

Presumption of validity: If a person is incapacitated at the time of decision to withhold or withdraw life‑prolonging intervention, the person's living will or medical power of attorney is presumed to be valid .

Florida: Living Will vs Designation of Health Care Surrogate

Living Will

Legal document containing specific determinations regarding which medical treatments you would or would not accept if you could not decide for yourself .

Decisions covered:

  • Pain management medication
  • Cardiopulmonary resuscitation (CPR)
  • Tube feeding
  • Antibiotics / antiviral medications
  • Mechanical ventilation
  • Dialysis
  • Palliative care
  • Organ donations

Health Care Surrogate Designation

Legal document wherein you grant another person (the agent) authority to make health care decisions on your behalf .

Scope varies according to the level of authority granted by the person creating the document. The agent's decisions can be as specific or general as the principal determines .

While a well‑structured estate plan containing both documents can avoid guardianship, some cases (e.g., restraining an incapacitated person who refuses to stay in a nursing home) may still require court‑appointed guardian .

Understanding POLST: Physician Orders for Life‑Sustaining Treatment

A POLST is meant for people diagnosed with a serious illness. This form doesn't replace your other directives. Instead, it serves as healthcare professional‑ordered instructions — not unlike a prescription .

Resuscitation
Mechanical Ventilation
Tube Feeding
Antibiotics
No transfer to ER
No hospital admission
Pain management

Key facts about POLST :

  • Your healthcare professional fills out the form using your advance directives and discussions about the likely course of your illness
  • POLST stays with you – posted near bed in hospital/nursing home, or clearly placed where emergency staff can find it
  • You can cancel or update POLSTs like advance directives
DNR and DNI orders: You don't need an advance directive or living will to have do not resuscitate (DNR) and do not intubate (DNI) orders. Tell your healthcare professional your preferences; they will write the orders and put them in your medical record. Keep a copy at home too .

Your 2026 Advance Care Planning Timeline

1
Reflect on Your Values

Think about independence, what situations would make life not worth living, and your priorities for quality of life .

2
Choose Your Healthcare Agent

Select someone willing to discuss medical care with you, who can speak up for you if there are disagreements .

3
Complete Forms (State‑Specific)

Use state‑specific forms (ABA, AARP, NHPCO). Most require signing before witness or notary .

4
Discuss with Family & Doctors

Talk to family members about your wishes – this helps them avoid conflict and guilt .

5
Distribute Copies

Give copies to healthcare professional, agent, and family. Carry wallet‑size card noting you have directives .

6
Review & Update

Review every 10 years, after new diagnosis, or change in marital status .

When to Seek Professional Guidance

You should consult an experienced estate planning or elder law attorney if :

  • You have questions about state‑specific requirements for advance directives
  • You need to coordinate healthcare powers with other estate planning documents
  • You anticipate complex family dynamics that could lead to disputes
  • You want to ensure your living will properly addresses all desired medical decisions
  • You have assets that could be affected by guardianship proceedings

A well‑drafted living will should address as many end‑of‑life decisions as possible. It is crucial to consult with a doctor and an expert attorney to determine the provisions to be included in the document .

Your Voice, Even When You Can't Speak

Living wills and healthcare directives are about dignity, choice, and relieving loved ones of impossible decisions. The 2026 legislative updates across multiple jurisdictions reflect a global movement toward empowering individuals to control their medical care .

  • Malta: Draft law introduces Advance Medical Directives with notarial formalities (18+, full capacity)
  • California SB 1088: Clarifies DNR, POLST, and advance directives; electronic signatures; cross‑state recognition
  • Virginia HB 548: Uniform Health Care Decisions Act (pending)
  • West Virginia: §16-30-6 establishes surrogate authority and presumption of validity
  • Florida: Distinguishes living will (specific treatments) from health care surrogate (designated decision‑maker)
  • Hong Kong HKU study: Over 90% of patients want a say, but communication gaps remain – conversation matters as much as documentation

As the HKUMed research reminds us, an advance directive is just a document. What matters most are the conversations that help us understand what matters to patients as they approach the end of life .

Take the first step this year: reflect on your values, choose your agent, complete the forms, and have the conversation. Your future self – and your family – will thank you.